So we finally had the appointment that we have been waiting for and it is confirmed that Harper will need to have surgery. We go back next week for her to have a CT scan and are waiting for appointments for her to see the neurosurgeon, neurologist and opthamologist, she will also need some blood work done soon and then again before surgery. They classified her case as Moderate/Severe and she will be having surgery sometime between 9-12 months so around May - August next year, we wont know the exact date until 3 weeks before.
She will be having the CVR/FOA surgery (cranial vault remodelling with frontal orbital advancement) the surgery will take around 6 hours to complete followed with a 1 week stay in the hospital.
CVR-During the surgery they take off the front portion of the skull. The surgeon then cuts and manipulates the skull so that it is placed back on in such a way that the brain has room to grow and looks better.
FOA- This is done to help correct the brow line which is more of a "V" shape. The surgeon removes the brow bone and makes adjustments so that it is the correct size to protect the eyeballs in the orbital socket. Also, it provides a more accurate "look" for the Harper, the way she was supposed to look.
Wishing you and your family all the best on your cranio journey with Harper... I know how you feel...
ReplyDeleteDanielle & Adrian
Thank you for your blog. I plan to follow your journey as my family will soon be on the same road. Yesterday, we learned that my 3 mo daughter will need surgery to correct her moderate metopic suture synostenosis. My husband's brother's daughter also had cranio but in the back on the right side. Best wishes to you and sweet Harper. - Michelle W.
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