On August 23rd 2010 our second precious baby was born, a little girl we named Harper Lily. After her birth I noticed that her head shape was a bit different, she seemed to have a pointy forehead. Harper was born prosterior (facing up) so the midwives and doctors put it down to that. They all said it will round out soon enough. She is now 6 weeks old and not only has it not gone away but it has become pronounced.
I did some research online and came across Metopic Craniosynostosis and Trigoncephaly. It was pretty scary as it described Harper's head perfectly and most other babies with this condition go on to have major skull surgery before their first birthday.
Earlier this week I took her to see our GP armed with some information and our doctor agreed that it looked like Metopic Craniosynostosis and sent off a referal to the craniofacial department at the Royal Children's Hospital here in Melbourne. Right now we are waiting for an appointment, it is a bit nerve racking just waiting, not knowing what is going to happen. Hopefully they see us soon.
Hi Rebecca,i clicked on, thinking it would be photo's etc. I had no idea it would be this, i do hope everything will turn out ok & will follow her progress. You & Pete must be worried, as every parent would, i think this site is a very good idea & may help you both, knowing people are thinking of you. All the besy to you all & i'll be thinking of you love Jan.
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